Back on the Topamax

Had 6 migraines in May as opposed to 2 in April, so my doctor told me to start taking the Topamax again. Hoping it doesn’t mess with my mood like when I first started it. It made me really short-tempered.

I am on my third night of not sleeping well. Keep waking up throughout the night and waking up extra early in the morning and not able to fall back asleep since cutting down on resperidal. Trying to decide if I should give it some more time for my body to adjust.  

I feel like I’ll never get off these meds, like I am dependent on them. How do I know if the symptoms are returning because I need the medication or if it is just a temporary result of coming off of the med?  How long do I wait it out and do I risk triggering a mood episode because of it?

Many Ends

A friend of mine from the program died recently. Drug related, but not sure if addiction related. I’m guessing so. Will never know for sure I bet. Doesn’t matter. She was too young, but suffering. Not able to get well as of late. I couldn’t help her. She didn’t want to change bad enough. I pray she’s at peace now.

I am weaning off the resperidal. Cut it in thirds last night. Plan is to cut it by third one week, half the next, and then off.  Right now I am feeling hopeful.

My anxiety is very manageable. We went out of town this past weekend and I didn’t even think about taking an Ativan, which is amazing. I always take an Ativan or two when away from home, especially over night. 

I’m not feeling depressed either. On the contrary, I feel motivated to accomplish things (chores, exercise, hobbies.) I am fairly patient with everyone right now. Some agitation when I don’t get my space, but this is something I expected with the schedule change of the kids being home from school, now that it is summer break. 

I’ve been off the Topamax for a week now. Had my fifth migraine of the month yesterday.  Not good. Over twice as many as last month. Still waiting on word of trying Botox. 

Been experiencing severe achiness in quads throughout the day several days a week, especially while in bed. Last weekend it was so bad it actually felt like my muscles were burning. Don’t have any idea why. Didn’t do anything out of the ordinary. Happening more and more frequently. Started a few months ago. Also having intermittent nausea.  Hoping my kidney function is ok. See doctor for follow up in July.

Daughter seems good. Got a job. Playing ball. Grounded this week for drinking with friends. Said she’s done it two other times. One we already knew about. Hope it’s nothing more than experimenting and that she is done. Teenagers. They are so fun except when they do stupid shit like that. 

An End to Hypomania and Meds

I’ve been sleeping well for almost a week now, through the night and some during the day – a sure sign my hypomania has passed. I am even dreading the Stitch Fix box I have coming that I was ready and willing to buy all of even though I bought the whole thing last month, which is a lot of money. 

I am not as silly or flighty or agitated. I’m more tired than I’d like to be and hope I don’t start getting depressed, especially when summer break starts and I have no more alone time like I do now with the kids in school all day.

My youngest one makes a lot of demands on me and it wears me out fast. Then I get irritated at her.  Then I feel guilty for getting irritated at her.  Then I feel trapped in this cycle and the depression sets in.  I’ll have to pray about this and ponder a way out of this pattern that seems to occur each summer.

I have to take it easy and slow throughout the day with lots of breaks, but she wants to be on the go, go, go. I feel guilty that I can’t be one of those moms. Guilty enough that I’ll push myself and try to be sometimes, only to end up sick and in tears from being overwhelmed, and worst of all full of self-hate because I have failed.

Maybe she can help me problem solve some ways to do stuff without me being the one who has to do it all with her. The problem is most, if not all, of her friends parents work and I don’t, so I end up being the activity driver and supervisor.

She is old enough to go to the neighborhood pool alone with friends this year, so that will help. However, if she’s anything like my other ones, once they became old enough to go without an adult, they were no longer really interested in going. Sigh.

I am down to one topamax a day. After Wednesday I will be off of it totally. So far, I haven’t noticed anything different about my migraines or mood from coming off of it. I am thankful for that.  I am so excited to be able to cut out one of my medicines since I am on so many. 

It makes me want to try to wean off of another one. Maybe the propranolol, which I may do if I get the Botox for migraines and that works. I’ll need my nuerologist’s help to wean off that because I only have 80mg capsules (can’t cut them into smaller doses.)

The other one I may try because I am not sure if I need it any more is the resperidal. Is anyone else on this?  At what dose and what are you on it for?  

I’ve been on it for so long that I forget why my doctor started me on it. I want to say bedtime anxiety since I take it several hours before bed so it can kick in by bedtime and help me fall asleep, but I can’t be sure. Since starting the resperidal, two other medications have been added that knock me out at night, so I am hoping I can get by without the resperidal.

But, I can’t come off two medicines at the same time. So, I’ll have to decide after I’m off the topamax for a little bit. I’m leaning toward the resperidal since I can do it on my own, although with summer coming, and its potential stresses as I described above, maybe that is not a good idea. Ugh!  I can’t decide. 

Guess I should talk to my psychiatrist about it. She’s so resistant to decreasing my meds though, because I still have a lot of anxiety and my moods still cycle.  So, yes, I kind of want to do it behind her back and then say, “Hey, look, I got off of a med and I am fine.” I feel like it would be disrespectful to do it without her collaboration, though.  She’s been my doctor for ten years and we are really close. 

I guess that’s about all. I did the dishes and folded some laundry today.  The bathrooms need to be cleaned, but I just can’t gather the motivation to do them. Maybe tomorrow.

Current Mood and Botox for Migraine

Waking up between 4 and 5am every morning is not fun. I’m averaging 3 hours less sleep than normal a day. Still quite agitated throughout the day. Extra energy, racing thoughts, hard to relax, spending too much money.  Hypomania, I guess.

I’m tapering off the topamax starting tonight per my nuerologist’s instructions. Not sure if it really helps anyway and figure it isn’t the best for my kidneys. Hoping it doesn’t increase migraine frequency or negatively affect my mood. 

He wants me to try Botox for migraine treatment prevenitive.  I only get a few migraines a month now and everything I am reading says Botox is for people who get 15 or more migraines a month. 

Have you had Botox for migraine treatment?  Did it help?

Many Changes

I stopped taking my magnesium pill last week because I ran out. I forget why I started taking it in the first place. I give it to my daughter, too. She ran out today.

I haven’t noticed any difference in myself except that I’m extremely impatient and agitated today.  I’m sure it’s from coming off of a busy weekend filled with overnight guests and no downtime for almost a week now. 

I saved some information on Pinterest about why I went on the magnesium. Several doctors have asked why we are on it and haven’t recommended it either way, but seem to always give me this perplexed look like, “Why are you taking that?”

I am kind of the type of person to try alternative things as long as I know they aren’t harmful. For example, I just bought a bunch of salt rock lamps. My daughter thinks I’m crazy. She doesn’t believe in any healing therapies. I can’t even get her to use a heating pad on her back injury like the doctor told her to use!

The neurologist increased my tizanidine from 4mg to 6mg today. Fingers crossed. He wants to take me off the propranolol eventually because he thinks I’m on too many medicines. I’m afraid it will increase my migraines again. I think we should try taking me off the topamax first. 

I’m agitated today, too, because of my weight.  I painstakingly lose ten pounds every spring only to gain it back every winter. My goal is to lose 20, which never happens. I count calories and basically starve for two months or so.

This year I’ve decided to try something different: a ketosis diet, which is a very little carbs, high fat, moderate protein type diet.  From what little I’ve read so far, putting your body in ketosis makes it burn fat for energy because you aren’t giving it the carbs and excess protein that it would normally convert to sugars to burn for energy, thereby leaving the fat alone.  Burning fat for energy equals quicker weight loss.

I’m nervous, like really nervous, about trying this because I know I am addicted to sugar. It’s going to be hard and my mood will be affected and that is what scares me the most. 

Has anyone ever tried this type of weight loss plan?  How did it work out for you?

She Did Better Today

Because we compromised. She took a psuedo anti-anxiety pill (an antihistamine prescribed for her anxiety) which enabled her to sit with our company most of the morning. Then I allowed her to go out with friends for a few hours.

I also caught myself babying her like I normally do when she is anxious or depressed, and the last time she had a depressive episode she told us she hated it. She said it made her not want to tell us what is going on because then we treat her different and she can’t stand it. 

Thank God I realized it because I don’t think she was going to say anything to me. She was just getting more and more agitated and I couldn’t understand why until I remembered. 

I said, “Oh my gosh, I’m so sorry. I’m treating you like baby. I forgot. I’ll stop.”

I saw instant relief come across her face. I’ll have to tell her to just say something to me next time. Those motherly, nurturing instincts are hard to fight. They just kick in automatically before I realize what I am doing. (Sigh).  

I think a lot of it has to do with my tone of voice.  I’ll talk to her like she’s fragile and has special privileges. I think it makes her feel uncomfortable because she has low self esteem and probably thinks she doesn’t deserve it.

Or maybe she doesn’t like it because she is strong willed and doesn’t like to feel weak, and me talking sickeningly gentle to her makes her feel that way. 

Or maybe she just wants to be treated the same so as to continue to feel as normal as possible when her mental health is anything but.

I know one thing and that is it is counterproductive for me to sit here and assume possible motives for why she doesn’t want me to treat her different when she’s depressed or anxious, so I guess I’ll stop trying to figure it out.

Anyway, she did say at one point that she doesn’t like it because it makes her feel like a baby. I suppose that reason makes sense enough.

Yet, all I want to do is give her a big ol’ hug, tear up and say, “But you are my baby!”

Medication Increase Helping and Daughter Update

I think the increase from 30-40mg of Viibryd two weeks ago is helping me cope better with stress. I seem to still feel the stress and the anger and sadness but I don’t feel the need to act on it in negative ways anymore.

I am able to handle it calmly and with purpose and deliberate actions, like setting boundaries and practicing breathing meditation or simply not engaging.  I have not been perfect by any means. Passive aggressiveness has occurred. Some crying over little things. But, overall some good changes. 

My daughter’s depression has let up these last few weeks. We think because the weather has gotten warmer. She really is affected by it. Four weeks of depression from cold dreary winter days.  And now two weeks of mild weather and all better. Amazing!

We have a house full of overnight guests and she is not doing well. Her anxiety is high and it is hard for me to handle, because my own is elevated.

So, dealing with her tears and her wanting to leave the house, which I won’t let her do because I think it’s rude to go out with friends when we have company, while dealing with all the stimuli of the company myself, is pushing me to my limits.

I’m not taking it out on her by using everything I’ve got in me. I didn’t take an anti-anxiety pill tonight. I definitely will tomorrow. I know it will help.  I wish she could take one, too, but they don’t prescribe them for kids.